Thank you for your participation and support of the Share & Care Cockayne Syndrome Network. By participating in the 2010 National Butterfly Walk for Cockayne Syndrome (CS) you have a tremendous impact on improving the lives of individuals with CS and their families.
Click on the “Get Started” button to find out if there is a location near you to register as a walker or volunteer helper and to set up a fundraising page. Online Personal Fundraising Pages are passionate, powerful, and persuasive, and you will raise more money, with less effort. You may also sponsor a friend by entering their name in the space provided on the top right of this page or click on the Donate button to simply make a donation for our worthy cause.
Cockayne Syndrome (CS) is a rare genetic disorder characterized by poor growth, microcephaly, progeria (premature aging), sensitivity to sunlight, moderate to profound developmental and neurological delays, and a shortened lifespan.
Funds received from the 2010 National Butterfly Walk enables The Cockayne Syndrome Network to continue its mission to help children with Cockayne Syndrome and their familes improve their Quality of Life through Support, Education and Research.
Registration is free and simple.
For more information on Cockayne Syndrome Visit: www.cockaynesyndrome.org