Dear Share & Care Families,

I am pleased to announce the 11^th International Cockayne Syndrome Family Conference will be held in the DALLAS, TEXAS area June 24^th – 27^th.  This year our theme is titled, “Blazing New Trails” symbolizing the remarkable progress being made toward new developments in research and awareness plus our achievements with embracing new families....Click here to read more.

Children's Hospital Boston is Now Seeking Participants for CS Observational Study