Share and Care Cockayne Syndrome Network Inc.

P.O. Box 282
Waterford, VA 20197

Jackie Clark, President & Executive Director
703-727-0404
cockaynesyndrome@gmail.com

Haylee Carroll, Vice President & Assistant Director
865-466-4634
cockaynesyndrome@gmail.com

Patricia Gonzalez, Secretary & Assistant Director
csshareandcare@gmail.com

Kim Houser Bereavement 
(Kim) 256-532-8898
csgoodgrief@gmail.com

Tim Carroll, Webmaster
865-696-1083
cswebinfo@gmail.com

Board of Directors
Terry Sullivan
Mark Pelson

Medical Advisory Board
Dr. Ed Neilan
Dr. PJ Brooks
Dr. Peter Kang